Families' Needs of Patients With Acquired Brain Injury: Acute Phase and Rehabilitation

de Goumoens, Véronique; Didier, Amélia; Mabire, Cédric; Zumstein-Shaha, Maya; Diserens, Karin (2019). Families' Needs of Patients With Acquired Brain Injury: Acute Phase and Rehabilitation ​Rehabilitation Nursing Journal, 44(6), pp. 319-327. 10.1097/rnj.0000000000000122

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PURPOSE: The aim of this study was to identify and compare the needs of families of patients with acquired brain injury (ABI) in acute care and rehabilitation settings. DESIGN: A descriptive exploratory study was conducted. METHODS: Data were collected in the acute care setting and in the rehabilitation setting during meetings with families (n = 54) of patients with ABI using the Family Needs Questionnaire. FINDINGS: In both settings, families identified obtaining information about ABI or the patients' health as the most important need, followed by support from health professionals. CONCLUSION: For families, accessing information about the disease situation was important regardless of patients being in the acute care or rehabilitation phase. To provide tailored care for these families, it is important to assess information needs systematically already in the acute phase of hospitalization. CLINICAL RELEVANCE: A paradigm shift is desirable to include families in care, identify their needs, and support them in a more tailored way.

Item Type:	Journal Article (Original Article)
Division/Institute:	School of Health Professions School of Health Professions > Nursing School of Health Professions > Nursing > Innovation in the Field of Health Care and Human Resources Development
Name:	de Goumoens, Véronique; Didier, Amélia; Mabire, Cédric; Zumstein-Shaha, Maya0000-0003-4253-3123 and Diserens, Karin
ISSN:	0278-4807
ISBN:	2048-7940 (Electronic) 0278-4807 (Linking)
Language:	English
Submitter:	Maya Zumstein-Shaha
Date Deposited:	22 Feb 2021 14:37
Last Modified:	02 Nov 2022 09:26
Publisher DOI:	10.1097/rnj.0000000000000122
Related URLs:	Publisher
PubMed ID:	29300227
Additional Information:	Notes: de Goumoens, Veronique Didier, Amelia Mabire, Cedric Shaha, Maya Diserens, Karin eng Rehabil Nurs. 2018 Jan 3. doi: 10.1097/rnj.0000000000000122. Custom 1: 2018/01/05 Date: 2018
ARBOR DOI:	10.24451/arbor.12905
URI:	https://arbor.bfh.ch/id/eprint/12905