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Understanding Emotional Dynamics in Autism Social Media Communities

URI
https://arbor.bfh.ch/handle/arbor/36994
Version
Published
Date Issued
2024
Author(s)
Gabarron, Elia
Dorronzoro, Enrique
Rivera-Romero, Octavio
Denecke, Kerstin  
Editor(s)
Mantas, John
Hasman, Arie
Demiris, George
Saranto, Kaija
Marschollek, Michael
Arvanitis, Theodoros N.
Ognjanović, Ivana
Benis, Arriel
Gallos, Parisis
Zoulias, Emmanouil
Andrikopoulou, Elisavet
Type
Book Chapter
Language
English
Abstract
Searches for autism on social media have soared, making it a top topic. Social media posts convey not only plain text, but also sentiments and emotions that provide insight into the experiences of the autism community. While sentiment analysis categorizes overall sentiment, emotion analysis provides nuanced insights into specific emotional states. The objective of this study is to identify emotions in posts related to autism and compare the emotions specifically contained in posts that include the hashtag #ActuallyAutistic with those that do not.
Methods: We extracted a sample of X' posts related to autism and used DistilBERT to assign one out of six emotions (sadness, joy, love, anger, fear, surprise) to each post.
Results: We have analyzed a total of 414,287 posts, 98,602 (23.8%) of those included the hashtag #ActuallyAutistic. The most common expressed emotion was joy, which was expressed in 52.5% of the posts, followed by sadness, identified in 28.6% of the posts. 12% of the posts expressed fear, 4.9% reflected anger, 1.1% showed love, and 0.9% expressed surprise. Posts tagged as #ActuallyAutistic showed less joy (27.1% vs. 60.4% in posts without this hashtag, p<0.001) and more sadness (52.7% vs. 21.1% in those without the hashtag, p<0.001).
Conclusions: The use of the hashtag #ActuallyAutistic is associated with a different emotional tone, characterized by less joy and more sadness. These results suggest the need for greater support and acceptance towards the autistic community, both online and in society in general. Insights from our study can be valuable for policy makers, health, educational or other programmes aiming at enhancing well-being, inclusiveness, improve services, and create a more compassionate and understanding atmosphere for autistic people.
Subjects
Q Science (General)
R Medicine (General)
T Technology (General)
ISBN
9781643685335
DOI
10.24451/arbor.22401
https://doi.org/10.24451/arbor.22401
Publisher DOI
10.3233/SHTI240804
Series/Report No.
Studies in Health Technology and Informatics
Publisher URL
https://ebooks.iospress.nl/doi/10.3233/SHTI240804
Organization
Institute for Patient-centered Digital Health  
AI for Health  
Technik und Informatik  
Volume
316
Publisher
IOS Press
Submitter
Denecke, Kerstin
Citation apa
Gabarron, E., Dorronzoro, E., Rivera-Romero, O., & Denecke, K. (2024). Understanding Emotional Dynamics in Autism Social Media Communities (J. Mantas, A. Hasman, G. Demiris, K. Saranto, M. Marschollek, T. N. Arvanitis, I. Ognjanović, A. Benis, P. Gallos, E. Zoulias, & E. Andrikopoulou, Eds.; Vol. 316). IOS Press. https://doi.org/10.24451/arbor.22401
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