Digital Care and Human Death: Ethical Tensions at the End of Life
Version
Published
Identifiers
10.3233/SHTI251528
Date Issued
2025-10-02
Author(s)
Type
Article
Language
English
Abstract
The digitization of healthcare - through electronic health records, predictive algorithms, remote monitoring, and automated decision-making tools - has revolutionized clinical workflows and optimized patient management. However, these developments often carry unintended consequences when applied to the end-of-life context, where the subjective, relational, and existential dimensions of dying resist abstraction and quantification. This paper explores the tensions between digital efficiency and the human realities of death, arguing that the virtuality of digital health systems risks alienating patients, families, and clinicians at precisely the moments where care must be most embodied and relational. Drawing from a conceptual analysis informed by medical ethics and palliative care literature, we examine how virtual representations (data, dashboards, protocols) interact with real dying bodies and social relationships. Through case illustrations, we highlight how systems designed for efficiency can unintentionally marginalize suffering, flatten complex narratives, and displace the rituals and presence that define authentic death. Our findings suggest a pressing need to reorient digital health design to account for the limits of representation and the irreplaceability of human connection at the end of life. We argue that any future model of digital care must not only prioritize outcomes but also preserve dignity, ambiguity, and relational integrity in death.
Publisher DOI
Journal or Serie
Studies in health technology and informatics
Journal or Serie
Studies in Health Technology and Informatics
ISSN
1879-8365
Publisher URL
Volume
332
Project(s)
ANON-KI
Publisher
IOS Press
Submitter
Sariyar, Murat
Citation apa
Sariyar, M. (2025). Digital Care and Human Death: Ethical Tensions at the End of Life. In Studies in Health Technology and Informatics (Vol. 332, pp. 206–210). IOS Press. https://doi.org/10.24451/arbor.12699
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