A Qualitative Study

Bergstraesser, Eva; Cignacco Müller, Eva; Luck, Patricia (2017). A Qualitative Study Palliative Care: Research and Treatment, 10, p. 117822421772477. Sage Publications 10.1177/1178224217724770

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Health care Professionals' Experiences and Needs When Delivering End-of-Life Care to Children.pdf - Published Version
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Pediatric end-of-life care (EOL care) entails challenging tasks for health care professionals (HCPs). Little is known about HCPs’ experiences and needs when providing pediatric EOL care in Switzerland. This study aimed to describe the experiences and needs of HCPs in pediatric EOL care in Switzerland and to develop recommendations for the health ministry. The key aspect in EOL care provision was identified as the capacity to establish a relationship with the dying child and the family. Barriers to this interaction were ethical dilemmas, problems in collaboration with the interprofessional team, and structural problems on the level of organizations. A major need was the expansion of vocational training and support by specialized palliative care teams. We recommend the development of a national concept for the provision of EOL care in children, accompanied by training programs and supported by specialized pediatric palliative care teams located in tertiary children’s hospitals.

Item Type:

Journal Article (Original Article)

Division/Institute:

Department of Health Professions > Abteilung Geburtshilfe
Department of Health Professions

Name:

Bergstraesser, Eva; Cignacco Müller, Eva and Luck, Patricia

ISSN:

1178-2242

Publisher:

Sage Publications

Submitter:

Admin import user

Date Deposited:

22 Jan 2020 12:12

Last Modified:

22 Jan 2020 12:12

Publisher DOI:

10.1177/1178224217724770

ARBOR DOI:

10.24451/arbor.5589

URI:

https://arbor.bfh.ch/id/eprint/5589

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