Clinical Ethics Consultation in Chronic Illness: Challenging Epistemic Injustice Through Epistemic Modesty

Weidmann-Hügle, Tatjana; Monteverde, Settimio (2022). Clinical Ethics Consultation in Chronic Illness: Challenging Epistemic Injustice Through Epistemic Modesty HEC Forum, 36(2), pp. 131-145. Springer Nature 10.1007/s10730-022-09494-8

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Leading paradigms of clinical ethics consultation closely follow a biomedical model of care. In this paper, we present a theoretical refection on the underlying biomedical model of disease, how it shaped clinical practices and patterns of ethical deliberation within these practices, and the repercussions it has on clinical ethics consultations for patients with chronic illness. We contend that this model, despite its important contribution to capturing the ethical issues of day-to-day clinical ethics deliberation, might not be sufcient for patients presenting with chronic illnesses and navigating as “lay experts” of their medical condition(s) through the health care system. Not fully considering the sources of personal knowledge and expertise may lead to epistemic injustice within an ethical deliberation logic narrowly relying on a biomedical model of disease. In caring “for” and collaboratively “with” this patient population, we answer the threat of epistemic injustice with epistemic modesty and humility. We will propose ideas about how clinical ethics could contribute to an expansion of the biomedical model of care, so that important aspects of chronic illness experience would fow into clinical-ethical decision-making.

Item Type:

Journal Article (Original Article)

Division/Institute:

School of Health Professions
School of Health Professions > Nursing

Name:

Weidmann-Hügle, Tatjana and
Monteverde, Settimio0000-0002-7041-2663

Subjects:

R Medicine > R Medicine (General)

ISSN:

0956-2737

Publisher:

Springer Nature

Language:

English

Submitter:

Settimio Monteverde

Date Deposited:

12 Sep 2022 14:06

Last Modified:

12 May 2024 01:36

Publisher DOI:

10.1007/s10730-022-09494-8

Related URLs:

Uncontrolled Keywords:

Clinical ethics Clinical ethics consultation Chronic illness Epistemic injustice Biomedical model of disease Scientifc epistemology

ARBOR DOI:

10.24451/arbor.17691

URI:

https://arbor.bfh.ch/id/eprint/17691

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